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GBS/CIDP Foundation International welcomes you to
our web site. Our focus is on providing
information and support for patients, family members, and healthcare
professionals.
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Kit's Journey
In April of 2009 Kit Ooraikul was stricken with a
severe case of Guillain-Barré syndrome.
His wife documented his journey through the various stages of GBS,
the wonderful treatment he received in Grey Nuns Hospital ICU (unit 24),
and his remarkable recovery.
Kit's Journey
Guillain-Barré syndrome:“Climbing to Recovery”
by GBS/CIDP
Foundation International
Chronic Inflammatory Demyelinating Polyneuropathy:
“What Is CIDP?” by GBS/CIDP Foundation International
Free Health Reform Webinar for Consumers of IVIG
August 19, 2:00 p.m. Eastern
Consumers of IVIG, which is a plasma protein therapy,
will learn exactly how federal health
care reform will affect you and your access to the therapy you need.
Click here for more information
Study Announcement
“Genome Wide Association Study of Guillain-Barré Syndrome”
Investigators at the University of Pennsylvania School of Medicine
in Philadelphia, Pennsylvania are conducting a study to examine
genetic factors for susceptibility to developing Guillain-Barré
Syndrome.
Eligibility for participating include the following:
- Age 18 years or older
- Have had GBS at anytime in the past
- Be willing to provide limited medical records documenting a
diagnosis of AIDP (GBS)
- Be willing to donate a blood sample for analysis
If you are interested in hearing more about this study and
potentially participate, please contact:
CIDP Patients – 2nd Outcome Study
The 2nd Outcome Study is being mailed the week of August 16th to U.S. CIDP
patients who are registered with the Foundation. This study is designed to provide our
organization with data on the effectiveness of various treatment protocols and the
quality of life being experienced by CIDP patients along various stages of treatment.
Part III pertains to access to care and insurance issues. This information will be of
tremendous importance in the Foundation’s advocacy efforts on your behalf at federal
and state levels and with insurance providers.
Please take the time to complete the study and return it by October 1, 2010 in the
self addressed, prepaid envelope we have provided. All responses are anonymous.
Thank you for your participation!
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Help support our organization every time you search or buy online!
Add the GBS CIDP Foundation International toolbar to Internet Explorer or Firefox. Once you add
the GBS CIDP Foundation International toolbar for Internet Explorer or Firefox, each time you shop at one of the more than 1,300 participating stores, a percentage of what you spend will be donated to us at no extra cost to you! You could even save money as the toolbar provides coupons and deals. The toolbar also has a search box and each time you search the Internet, about a penny is donated to us. No registration is required! GBS/CIDP Goodsearch Toolbar
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