GBS|CIDP Foundation International Welcomes New Congress and New Administration, Additional Opportunities for Advocacy This month, GBS|CIDP Foundation International sent its introductory and welcome letter the 119th United States Congress, expressing the needs of our patient and caregiver community. In the letter sent to all current US Representatives and Senators, we outlined our vision for convenient…
Speaker Series – Episode 15 Summary In this Speaker Series episode, we talked with Dr. Brandon Peters, a neurologist, sleep specialist, and researcher at Virginia Mason Franciscan Health in Seattle. This discussion dives into the world of sleep, medications and treatments, lifestyle changes, and other factors that impact sleep. Relevant Resources Sleep Books by Dr….
Share Your GBS Journey – Participate in Our Market Research Study for Patients and Care Partners We are excited to announce an upcoming market research study focused on understanding the experiences of individuals affected by Guillain-Barré Syndrome (GBS) and their care partners. The goal of this is to learn more about your GBS journey to…
2025 Multifocal Motor Neuropathy (MMN) Awareness Month It is Multifocal Motor Neuropathy (MMN) Awareness Month, a time to shine a spotlight on Multifocal Motor Neuropathy (MMN) and rally support for those affected by this rare, chronic condition. The GBS|CIDP Foundation International invites you to participate and make a difference! Throughout the month, we’re offering opportunities…
To read the Nature Reviews article on Guillain–Barré syndrome, please click here.
Respiratory syncytial virus (RSV) is a highly contagious virus that causes severe respiratory illness, leading to approximately 177,000 hospitalizations and 14,000 deaths annually among adults aged 65 and older [1]. Individuals with weakened immune systems are particularly at risk for severe complications from RSV [2]. RSV vaccines have proven to be highly effective in preventing…
“To our family and friends in the community affected by the California wildfires, our hearts and thoughts are with you during this devastating time. If you are living with GBS, CIDP, MMN, or variant conditions and are facing difficulties accessing medical treatment or need support, please do not hesitate to reach out to the Foundation….
University of Kansas Neuromuscular Review Course January 25, 2025, at the Bellagio Hotel in Las Vegas, Nevada Register now for the Neuromuscular Review Course, presented by leading neurologists specializing in neuromuscular clinical issues related to diagnosing and treating neuromuscular diseases. This program is designed for neurologists, nurse practitioners, physician assistants, trainees, and other HCPs treating…
Speaker Series – Episode 14 Summary In this Speaker Series episode, we talked with Rebecca Aune, Director of Education Programs, and Hayley Mason, Policy Analyst, at the National Organization for Rare Disorders (NORD). This Speaker Series Summary will explore the drug development process and the factors and people that influence it. Resources Learn more about…
VITALIZE (EFC18156) For US Audience Only A Study to Test the Efficacy and Safety of Riliprubart Against the Usual Treatment of Intravenous Immunoglobulin (IVIg) in People With Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) (VITALIZE) The purpose of the study is to evaluate effects and safety of riliprubart compared to IVIg in adult participants with CIDP who…
Mobilize Clinical Trial for CIDP For US Audience Only MOBILIZE (EFC17236) A Study to Test the Effects and Safety of Riliprubart in People With Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) for Which the Usual Treatments do Not Work (MOBILIZE) The purpose of this Phase 3 study is to test the effects and safety of riliprubart compared…
Speaker Series – Episode 13 Summary In this Speaker Series episode, we talked with Ms. Kate Costello, a Licensed Nutrition Specialist, Mentor and Wellness coach, about nutrition and how to eat in the face of challenges with our conditions. Resources Learn more about our Patient Registry Explore other Speaker Series Summaries Join a community with…
Bryn Mawr Rehab Foundation Event On September 24, 2024, Bryn Mawr Rehabilitation Hospital in Malvern, PA hosted an Open House for our local patient community. Moderated by Maria Harris, DPT, PT with Main Line Health, the event showcased the state-of-the-art facility and their commitment to creating a comprehensive rehabilitation program for each patient. Attendees were…
University of Alabama at Birmingham (UAB) team joins the Birmingham Walk & Roll event The GBS|CIDP Foundation International team was honored to have the University of Alabama at Birmingham (UAB) team join us for the Birmingham Walk & Roll event. Thanks to Foundation staff member, Lori, for her pivotal role in connecting with Eroboghene Ubogu…
The Big Get Together Article was written by: Claire Shaw, CIDP Patient and GAIN Community Member When Rich asked me whether I wanted to say a few words today about the GBS and CIDP community, it made me wonder precisely how long I’ve been a member of the club that no one wants to be…