Given these disorders are so rare, it can be challenging to find news stories, blogs or other online information. As part of keeping our community informed and up-to-date, we continually gather news-worthy information and share it here.
We also like hearing from you about the types of stories, articles, etc. that you are interested in reading. Feel free to send us feedback or even articles that you suggest would be appropriate and helpful for others.
To read about this article, visit https://www.morningstar.com/news/pr-newswire/20250228ph29744/new-survey-offers-detailed-view-of-short-and-long-term-burden-of-guillain-barr-syndrome
At GBS|CIDP Foundation International, we recognize the power of unity and awareness in the fight against rare diseases. On Rare Disease Day, we stand with our global community to shine a light on Guillain-Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related neuropathies. This day is a vital reminder that…
The beautiful city of Agrigento, Italy – nominated as the Italian City of Culture 2025 – became a hub of history, art, and hope as it hosted the Rare Disease event: “Innovation in Research, Culter and Care.” Patients, caregivers, patient organizations, researchers, and expert physicians came together to share knowledge, enhance collaboration, and envision a…
Advocacy Policies The GBS|CIDP Foundation International is committed to advocating for policies that enhance the lives of individuals affected by Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN) and related conditions. Our policy engagement focuses on key areas that directly impact our community. Policy Priorities To achieve these goals, we will:…
GBS is a rare immune disorder that damages peripheral nerves (that is, nerves outside of the brain and spinal cord). In most people GBS is triggered by exposure to an infectious illness, and the most frequently encountered infectious illness is a gastrointestinal infection known as Campylobacter jejuni. Campylobacter jejuni is commonly transmitted through food, particularly undercooked poultry and…
CIDP Financial Assistance Fund NORD’s CIDP Patient Assistance Program offers eligible individuals diagnosed with CIDP financial support (Premium, Copay, and Medical Assistance) to pay for out-of-pocket healthcare costs directly related to the care and treatment of this diagnosis. Contact info for NORD’s CIDP Program: Phone: 203-267-9005 Email: CIDP@rarediseases.org The quickest way to apply is on…
The GBS|CIDP Foundation International is a global nonprofit organization supporting individuals and their families affected by Guillain-Barre Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN) and related conditions through a commitment to support, education, research and advocacy. The steadfast commitment to improving lives of patients impacted by these conditions propagated the responsibility…
GBS|CIDP Foundation International Welcomes New Congress and New Administration, Additional Opportunities for Advocacy This month, GBS|CIDP Foundation International sent its introductory and welcome letter the 119th United States Congress, expressing the needs of our patient and caregiver community. In the letter sent to all current US Representatives and Senators, we outlined our vision for convenient…
To read the Nature Reviews article on Guillain–Barré syndrome, please click here.
Respiratory syncytial virus (RSV) is a highly contagious virus that causes severe respiratory illness, leading to approximately 177,000 hospitalizations and 14,000 deaths annually among adults aged 65 and older [1]. Individuals with weakened immune systems are particularly at risk for severe complications from RSV [2]. RSV vaccines have proven to be highly effective in preventing…
“To our family and friends in the community affected by the California wildfires, our hearts and thoughts are with you during this devastating time. If you are living with GBS, CIDP, MMN, or variant conditions and are facing difficulties accessing medical treatment or need support, please do not hesitate to reach out to the Foundation….
University of Kansas Neuromuscular Review Course January 25, 2025, at the Bellagio Hotel in Las Vegas, Nevada Register now for the Neuromuscular Review Course, presented by leading neurologists specializing in neuromuscular clinical issues related to diagnosing and treating neuromuscular diseases. This program is designed for neurologists, nurse practitioners, physician assistants, trainees, and other HCPs treating…
Bryn Mawr Rehab Foundation Event On September 24, 2024, Bryn Mawr Rehabilitation Hospital in Malvern, PA hosted an Open House for our local patient community. Moderated by Maria Harris, DPT, PT with Main Line Health, the event showcased the state-of-the-art facility and their commitment to creating a comprehensive rehabilitation program for each patient. Attendees were…
University of Alabama at Birmingham (UAB) team joins the Birmingham Walk & Roll event The GBS|CIDP Foundation International team was honored to have the University of Alabama at Birmingham (UAB) team join us for the Birmingham Walk & Roll event. Thanks to Foundation staff member, Lori, for her pivotal role in connecting with Eroboghene Ubogu…
Michael Ring, a determined GBS warrior who has turned his personal struggle into an inspiring journey of resilience. Diagnosed with Guillain-Barré Syndrome (GBS), he faced incredible physical challenges that could have ended his marathon dreams. But instead of giving up, he pushed through, reclaiming his strength step by step. Now, he’s sharing his story with…